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Full Committee Hearing

Unlocking Hope: Access to Therapies for People with Rare, Progressive, and Serious Diseases

Time: 10:00am
Location: SD-106

Member Statements


  • Brian Wallach JD

    I AM ALS
    Kenilworth, IL
  • Maureen Bell

    Galactosemia Patient and Advocate
    Chalfont, PA
  • Margaret Plews-Ogan MD

    Brodie Professor of Medicine
    University of Virginia
    Charlottesville, VA
  • Anish Bhatnagar MD

    Chief Executive Officer
    Soleno Therapeutics
    Redwood City, CA
  • Holly Fernandez Lynch JD, MBe

    Assistant Professor of Medical Ethics and Law
    University of Pennsylvania
    Philadelphia, PA
  • Keith Desserich

    Chairman/Co-Founder, The Cure Starts Now Foundation
    President, Pediatric Brain Tumor Consortium Foundation
    Cincinnati, OH