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Share Your Story With Congress

Have you or a loved one been affected by a rare, progressive, or similar serious disease? Senator Braun, Ranking Member of the Senate Special Committee on Aging, will be holding a hearing on the unmet medical need experienced by people with rare, progressive, and serious diseases face, on Thursday, October 26 at 10:00AM. We want to amplify your experiences and make sure that your story is heard by Congress. You can submit your stories to the Committee for entry into the record at


patient stories (2)